Tuesday, August 13, 2013
Weird, very weird
I had the strangest dream
That Small Man was on board an airplane that crashed
And he was the only survivor
A few scratches etc but otherwise he walked away from it
It was so real and vivid
As were my feelings of relief
No idea what this means!!
G
x♥x
Sunday, August 11, 2013
A Question..
I joined a support group for Lyme Disease in Australia a few months ago (when all of this started)
I have been slowly commenting and 'liking' stuff but mostly reading
Friday I posted a question
"What is the most ridiculous piece of advice/diagnosis you have ever received from a doctor or family/friend"
I have had nearly 100 responses
Some of them are heart breaking
One lady was told by her GP
"Sometimes you just have to give up hope"
WAKE UP AUSTRALIA!!!!!
G
x♥x
Friday, August 9, 2013
Building building
Still here
It has been suggested that I should do a bit of a diary, on symptoms, to try and find a pattern
This is a very good suggestion and sensible
Can I do it?
I am so hopeless with stuff that HAS to be done every day.....
My bench looks like a nursing home
But at least this part is organised.
I find I am 'crashing' approx 21 hours after I take the Doxycycline, my bones will turn to ice, I have to lie down with several blankets, sleep for an hour even. My neck feels weird, like I have really swollen glands or something.
I am turning into a 'morning' person.
Wwhhhaaatttt!!???!!
I know, NEVER in my life
I had one particularly good morning on Wednesday.
I felt normal
No brain fog
No ringing in my ears (cicada head)
POTS was minimal
Even if that was 50% improvement - I could live with that
Small Man is still sleeping A LOT
Bad, bad headaches
Trying to help him detox as much as possible
Because he is unable to drink stuff that looks like this:
Whereas I can (when I get to it, hard on work days at the moment).
This is fresh beetroot, celery, pineapple, apple, cucumber, ginger, carrot, garlic juice with some chia seeds.
Epsom salt baths will help Small Man, along with reduction of sugar in his diet (which we have done).
I have ordered further supplements to the Vitamin C, Magnesium, probiotics and B12 that we are already taking.
Currently we are up to 4 x 100mg of Doxycycline per day.
Tuesday we add 300mg Rifampicin
7 days later we add another 300mg Rifampicin
7 days later we start Plaquenil
So far we can live with the Herx
G
x♥x
It has been suggested that I should do a bit of a diary, on symptoms, to try and find a pattern
This is a very good suggestion and sensible
Can I do it?
I am so hopeless with stuff that HAS to be done every day.....
My bench looks like a nursing home
I find I am 'crashing' approx 21 hours after I take the Doxycycline, my bones will turn to ice, I have to lie down with several blankets, sleep for an hour even. My neck feels weird, like I have really swollen glands or something.
I am turning into a 'morning' person.
Wwhhhaaatttt!!???!!
I know, NEVER in my life
I had one particularly good morning on Wednesday.
I felt normal
No brain fog
No ringing in my ears (cicada head)
POTS was minimal
Even if that was 50% improvement - I could live with that
Small Man is still sleeping A LOT
Bad, bad headaches
Trying to help him detox as much as possible
Because he is unable to drink stuff that looks like this:
Whereas I can (when I get to it, hard on work days at the moment).
This is fresh beetroot, celery, pineapple, apple, cucumber, ginger, carrot, garlic juice with some chia seeds.
Epsom salt baths will help Small Man, along with reduction of sugar in his diet (which we have done).
I have ordered further supplements to the Vitamin C, Magnesium, probiotics and B12 that we are already taking.
Currently we are up to 4 x 100mg of Doxycycline per day.
Tuesday we add 300mg Rifampicin
7 days later we add another 300mg Rifampicin
7 days later we start Plaquenil
So far we can live with the Herx
G
x♥x
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