~AnD I alSo MiSs~

My Garden

Sure, there are some pretty flowers out there

And a million or so weeds

Splendid roses this year

Surprisingly....

I am loving the PINK lavender - which is a contradiction isn't it - haha!
There is some in the bunch in the photo.....

Pink daisies

Pink freesias

Shades of pink, white and cream roses, a blue moon in there that hasn't flowered yet

I would love all flowers in my garden to be pink, purple, white, cream and blue

I find them the most pleasing to the eye :)


Next year I would REALLY like a veggie garden.

One thing at a time though

Need to be able to maintain what I have first.....

G
x♥x

~ I MISS YOU !! ~

I have to admit I do miss the little blogging community that once was

It was such a nice group

Reading back through old posts and seeing old comments and wondering where most of you have gone?

Most aren't blogging any more, I don't see many updated posts

Others are just far too famous (:P) to be commenting on mere commoners blogs any more (bahaha!)

Maybe Facebook, for all it's quick-ness and straight to the point-ness has taken the place of it?

I am very guarded as to what I share on Facebook and wouldn't dream of writing even 1/8th of what I write here

Maybe everyone has run out of things to write about?

Either way, if you are reading this ~ I hope all is well in your world xx

G
x♥x

~ 2 Years Down ~

Actually, it was yesterday

2 years since SM FINALLY received the operation he so badly needed

And here we are - over 40kg lost - an almost normal liver function (until Doxy and Rifampicin shook things up a bit)

There are some things about those few days I'll never forget

The Fawlty Towers like experiences with accommodation - and it was expensive accommodation - bloody Melbourne Cup week

Finding an email while we were there to say that Possum had his orientation for his new job THE DAY BEFORE we were due to fly home - and having to send him home a day early

'Nanna' telling SM he would be ok to have a sip of water before the op and nearly screwing up the whole thing....lucky he didn't listen to her

The main thing I will remember is feeling completely at peace with the whole thing

I didn't shed a single tear

He wasn't nervous

We had waited so long and were so ready

He had some issues with his blood pressure after the operation 

And had some excruciating pain

For the most part though, it was incident free

Best decision 

Before - I think he ended up approx 10kg heavier than this 

More recently. Getting there!
This was the day he had his hair cut and coloured for the hair show he modelled in.

So proud!
We have slowed his weight loss down, he lost a lot of weight quickly.
Skin needs time to recover.
I would hate him to have to have further surgery to remove excess skin.
Now that his health is improving he may be able to exercise a little soon.
This will help keep his skin from sagging.

Criticise me now bitches ;)

G
x♥x

~Disappointment Of Sorts~

Feeling a bit, well, let down by people in general

I don't have high expectations at all

But there are some that haven't even bothered to ask how we are going since starting treatment

I find this really sad

That they really just don't care enough to ask

Yet when someone else has the flu they are falling all over themselves

And I also hate it when people that know full well that we are NOT well

Make the statement

'Hope you are all well'

Thats not a question!!

Oh well, at least I know who gives a rats arse and who doesn't.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

We saw the cardiologist yesterday for SM's results

Nothing to worry about cardiologically but he feels his reaction to the tilt table test was neurological.

He also wants him to have another sleep study.

So it looks like a few more appointments yet.

Oh and he needs to start using his CPAP again.

He was actually fine with that which surprised me.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

My work is typically busy for this time of year

Except we have had record sales which is fabbo

Record sales = someone needs to pack that shit

And I am struggling to function some days

At least the nausea has settled

But I am still not taking the full dose of meds

I need to add 1 Rifampicin per day, and then 2 Plaquenil

We will get our latest liver function test results today

And my 'heavy metal' test results (lead and mercury)

The pathology have kept my test request on file for 'serial monitoring'
Meaning I will have to have it checked frequently

Should be fun 

The girl I have managed to get the last few times has been good at finding my veins
Which makes the whole exercise a lot easier


Anyhoo

I'm going to be spending minimal time on FB for the next few days at least

It just makes me feel worse

Even though I wouldn't have a diagnosis without it

And I use messenger an awful lot for work

And there have been many days where it's all I could manage

And it stops me feeling so isolated

It also kind of makes me sad to read about other people getting on with their lives in the usual way, and frustrated not knowing how long it will be before I can just get out of bed and get through a full day without any issue.

Don't take your health for granted !!


G
x♥x