Shitfully Sad :(

Nearly at the end of another week and it's been horrible

Firstly an awful work dinner last weekend

Which will be my last

Long story but I drove home in tears

I have been chasing a very bad distributor
for the truth and some money for a few weeks 
This has all come to a head so to speak, I found out for sure
That she has been lying to me, not sure she knows the truth
To be honest

I was looking forward to seeing my Grandma before Christmas (she has gone onto a home recently)
But now finances aren't looking good for a night away so have decided not
To go

Feeling pretty sad actually :(

Xxx

Recipe Ideas Please!!?? :)

Writing this on my phone

Because the thought of sitting upright 

Is enough let alone ACTUALLY doing it

Getting organised for my teams end of year function

Am giving myself a break this year
And ordering pizza!

But will do salads and desserts

Good old pavlova, sticky tape pudding and a fruit salad will do fine

But which salads?

Anyone have any fantasmic omg amazing salad recipes 
they would like to share with me?

Or ideas

My ideas area of my brain is a bit numb or something

*sigh*

We're nearly there

I can see the finish line ....

G
Xxx

~AnD I alSo MiSs~

My Garden

Sure, there are some pretty flowers out there

And a million or so weeds

Splendid roses this year

Surprisingly....

I am loving the PINK lavender - which is a contradiction isn't it - haha!
There is some in the bunch in the photo.....

Pink daisies

Pink freesias

Shades of pink, white and cream roses, a blue moon in there that hasn't flowered yet

I would love all flowers in my garden to be pink, purple, white, cream and blue

I find them the most pleasing to the eye :)


Next year I would REALLY like a veggie garden.

One thing at a time though

Need to be able to maintain what I have first.....

G
x♥x

~ I MISS YOU !! ~

I have to admit I do miss the little blogging community that once was

It was such a nice group

Reading back through old posts and seeing old comments and wondering where most of you have gone?

Most aren't blogging any more, I don't see many updated posts

Others are just far too famous (:P) to be commenting on mere commoners blogs any more (bahaha!)

Maybe Facebook, for all it's quick-ness and straight to the point-ness has taken the place of it?

I am very guarded as to what I share on Facebook and wouldn't dream of writing even 1/8th of what I write here

Maybe everyone has run out of things to write about?

Either way, if you are reading this ~ I hope all is well in your world xx

G
x♥x

~ 2 Years Down ~

Actually, it was yesterday

2 years since SM FINALLY received the operation he so badly needed

And here we are - over 40kg lost - an almost normal liver function (until Doxy and Rifampicin shook things up a bit)

There are some things about those few days I'll never forget

The Fawlty Towers like experiences with accommodation - and it was expensive accommodation - bloody Melbourne Cup week

Finding an email while we were there to say that Possum had his orientation for his new job THE DAY BEFORE we were due to fly home - and having to send him home a day early

'Nanna' telling SM he would be ok to have a sip of water before the op and nearly screwing up the whole thing....lucky he didn't listen to her

The main thing I will remember is feeling completely at peace with the whole thing

I didn't shed a single tear

He wasn't nervous

We had waited so long and were so ready

He had some issues with his blood pressure after the operation 

And had some excruciating pain

For the most part though, it was incident free

Best decision 

Before - I think he ended up approx 10kg heavier than this 

More recently. Getting there!
This was the day he had his hair cut and coloured for the hair show he modelled in.

So proud!
We have slowed his weight loss down, he lost a lot of weight quickly.
Skin needs time to recover.
I would hate him to have to have further surgery to remove excess skin.
Now that his health is improving he may be able to exercise a little soon.
This will help keep his skin from sagging.

Criticise me now bitches ;)

G
x♥x

~Disappointment Of Sorts~

Feeling a bit, well, let down by people in general

I don't have high expectations at all

But there are some that haven't even bothered to ask how we are going since starting treatment

I find this really sad

That they really just don't care enough to ask

Yet when someone else has the flu they are falling all over themselves

And I also hate it when people that know full well that we are NOT well

Make the statement

'Hope you are all well'

Thats not a question!!

Oh well, at least I know who gives a rats arse and who doesn't.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

We saw the cardiologist yesterday for SM's results

Nothing to worry about cardiologically but he feels his reaction to the tilt table test was neurological.

He also wants him to have another sleep study.

So it looks like a few more appointments yet.

Oh and he needs to start using his CPAP again.

He was actually fine with that which surprised me.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

My work is typically busy for this time of year

Except we have had record sales which is fabbo

Record sales = someone needs to pack that shit

And I am struggling to function some days

At least the nausea has settled

But I am still not taking the full dose of meds

I need to add 1 Rifampicin per day, and then 2 Plaquenil

We will get our latest liver function test results today

And my 'heavy metal' test results (lead and mercury)

The pathology have kept my test request on file for 'serial monitoring'
Meaning I will have to have it checked frequently

Should be fun 

The girl I have managed to get the last few times has been good at finding my veins
Which makes the whole exercise a lot easier


Anyhoo

I'm going to be spending minimal time on FB for the next few days at least

It just makes me feel worse

Even though I wouldn't have a diagnosis without it

And I use messenger an awful lot for work

And there have been many days where it's all I could manage

And it stops me feeling so isolated

It also kind of makes me sad to read about other people getting on with their lives in the usual way, and frustrated not knowing how long it will be before I can just get out of bed and get through a full day without any issue.

Don't take your health for granted !!


G
x♥x

OMG.....No words....

WATCH THIS.....


Please.

It's long-ish.

But explains so much.

G
x♥x

*~*Lucky*~*

The good days remind me of what I am aiming for

I am trying to see it like this, otherwise the to and fro of good days and bad would do my head in

'Count your blessings'

I'm trying to

I managed 3 or 4 good days in a row - then was hit by an insane migraine Friday afternoon (worst in years, my little finger went numb, I was severely nauseous and dehydrated, could barely stand, not to mention the pain in my head which, well, derr...)
and again Saturday afternoon (but not as bad...phew!!).

Today I am clear of mind, but slept soundly for an hour or more this afternoon, sometimes you just have to give in

I have been back to GP Matt

Saturday appointment, oooh...progressive ;)

NO CUSHINGS DISEASE - Thank whoever for that

Would prefer no more pills thanks

He is testing me for heavy metals - lead and mercury.
The super dooper mouthguard I wear to bed to 'stop me from snoring' (it doesn't always work) has stained where one of my fillings is, so basically it's leaking something into my system. Borrelia and co can be harder to kill with heavy metals in the system.
Gosh he's an amazing GP.
I could go in there and ask to be tested from bubonic plague and he'd probably do it :P



I have just read of yet another child diagnosed with Lyme on the ME/CFS support group page.
This particular sweetheart has barely been able to sit up for the last few years, unable to get dressed most days etc.
Again, I say not everyone has Lyme BUT

I personally believe CFS/ME is a nasty, godawful SYMPTOM of something else.
Usually infection of some kind.
How sad that yet another family have suffered for 6 long years, and will now have to suffer more as their child is so ill from this shit.
How is this fair????


We have some Chookies - 3 in fact - Marlene, Charlene and Darlene ;)
Possum is loving it, he has only wanted chickens since he was about 5.
The thought of having something else to look after was far too much for me for a very long time.
I'm kind of ok with it now, as long as the boys are willing to help me out.
Cruelty free eggs are awesome :)

They have an extra huge run and cosy house which we have fenced, as the naughty jealous blue heeler found it necessary to run at them and bark.
Max is shit scared of them, it's hilarious!!
Curiosity gets the better of him though, and he sneaks up the side of the garden bank and spies on them - he's so cute!

Trying out a few new recipes as well, sick of cooking the same old stuff.
This turned out really nice, but then the nasty, nasty migraine struck.
Have frozen the rest of it as I'm not sure I can eat it again yet:

Thai Red Curry Veggies

Gluten free noodles by the way - it's that 'Slim Pasta' the Angel Hair variety.

Going to try a green curry one next that has mushrooms and lemongrass, then a nice cauliflower recipe that I found.

Apart from this I have been keeping to myself really.
Sometimes I just run out of words for conversation.

Take Care,

G
x♥x

Whoopeee :)

Feeling normal right at this moment

Just thought I'd share that with you ;)


I have had some other good news recently

My Possum has been asked to undertake McManager training some time in the near future

He has been working there for almost 2 years now!!

I think he has found his 'thing'

He has not missed a single shift in that whole time

So proud of my big boy

Sometimes what you think you want to do and what you are good at turn out to be two different things

So true for him

He would be happy to never fix another computer again he tells me!!


G
x♥x

Oh Bloody Hell !!!

Monday SM had his appointment for a tilt table test at the cardiology dept of the local hospital.

I am no snob....but that place is EXACTLY why we have private health insurance.

No, I won't apologise for that statement, if you knew what I have been through in that place....

I have to wonder, if my father had his heart attack in any other city, would he have survived?

Say no more....

Anyway, I dread going there for anything.

I was told on the phone that I could go in with SM if 'I really wanted to'
Well I really wanted to.

Nurse comes out to get him for his appt and tells me no I can't go in at all, and to 'go and get a coffee'.
Knowing that he was going to need a cannula in his arm, knowing that as he had fasted for ages and what his veins are like, knowing that he is nervous with needles, knowing how he was going to physically react to the test....lets just say it didn't go down well.

I sat for the nearly 3 hours and waited for him.

He had sent me a text msg from the room saying "I am going to have to have that needle"
then a sad face ":("
So I sat and cried for a few hours.

He was a wreck when he came out - 'Herx cheek' (Herxheimer reaction to antibiotic/antimalarial treatment gives him one red cheek), sweating, dishevelled.
He said at one point he couldn't see/hear properly - the nurse confirmed his blood pressure had 'dropped a bit' - so I am assuming it was a positive test although I don't have the results yet.

We were both exhausted.

The next day he had volunteered his services, or should I say his hair, to a young lady who was desperate for a male model to complete her training.
This has led to him being in her hair show, doing a catwalk show etc etc
I dropped him off at 11.30am, came home, ate, then Mum came to do my banking and decided to vacuum.

I didn't feel good. At all.

By the time I had collected him at 2.45pm I really didn't feel good, but as I have rarely felt 'good' since starting treatment, but it down to that.

By that evening I had the full blown flu.

I didn't think it was physically possible to feel any worse.

I was soooo wrong.

I had meningitis as a teenager, pretty sure I didn't feel this ill :( :(

On top of it, I had the biggest order to pack that I have had in months ($7,500 worth - massive).

Somehow I managed to get it packed, but not delivered as I usually would.

I was having head spins, I broke out in some weird rash at one stage (one of my ladies noticed)...

By some sort of miracle I don't appear to have made a single mistake with the packing!!!

My team helped out.

I have always been quite independent, not having any help with my kids when they were little or anyone to rely on will do that.

I have had to give in, and let people help me.

I still don't like it at all.

I am so thankful to be feeling much better today.

I have an easier week ahead of me, it's so tempting to rush about and catch up on everything all at once, but I will go slowly-ish.


Thank god that's over........

G
x♥x

Yeah Well I AM still Alive

Bloody just it feels like

Worst 5 weeks of my life

Seriously

I'm sure I'm 'just not detoxing' enough or some rubbish

My god I'm over some of the 'Lyme-speak' already (on support group)

I have no patience for what I consider 'patheticness'

Sorry about that...

Doctors suggestion was useless

To the endless/constant/24 hour nausea - to the point of waking me at 3am, and I'm up out of bed getting Maxolon

And what feels like the flu thrown in

The days in bed

On the couch

Watching everything pile up around me

And not one single person (aside from SM) that I know in real life has a single fucking clue how dreadful this is

So I took matters into my own hands

And will be reducing my pills on work days

Oh yes, I know

It's going to take longer etc etc

I have to be able to live in the mean time

2 years of this??

Never.

I'm not a resilient as I thought I was

Clearly :/

Then to top it off

My cortisol is too high

So I need more tests to establish the cause

No wonder I'm so goddam fat

The problem is the tests have to be done at 8am

That is nearly impossible for me most days

I'm doing my best though :/

The only positives to come from any of this

Is that
A: the meds are WORKING 
B: I get all of my answers in a 3 month period, stuff that has been making me fat and ill for years.

I will NEVER regret seeing Dr M in Sydney

He has pretty much saved my health

*sigh*

Must be bed time

G
x♥x

Weird, very weird

I had the strangest dream

That Small Man was on board an airplane that crashed

And he was the only survivor

A few scratches etc but otherwise he walked away from it

It was so real and vivid

As were my feelings of relief

No idea what this means!!

G
x♥x

A Question..

I joined a support group for Lyme Disease in Australia a few months ago (when all of this started)

I have been slowly commenting and 'liking' stuff but mostly reading

Friday I posted a question

"What is the most ridiculous piece of advice/diagnosis you have ever received from a doctor or family/friend"

I have had nearly 100 responses

Some of them are heart breaking

One lady was told by her GP

"Sometimes you just have to give up hope"

WAKE UP AUSTRALIA!!!!!

G
x♥x

Building building

Still here


It has been suggested that I should do a bit of a diary, on symptoms, to try and find a pattern

This is a very good suggestion and sensible

Can I do it?

I am so hopeless with stuff that HAS to be done every day.....

My bench looks like a nursing home 

But at least this part is organised.

I find I am 'crashing' approx 21 hours after I take the Doxycycline, my bones will turn to ice, I have to lie down with several blankets, sleep for an hour even. My neck feels weird, like I have really swollen glands or something.

I am turning into a 'morning' person.

Wwhhhaaatttt!!???!!

I know, NEVER in my life

I had one particularly good morning on Wednesday.

I felt normal

No brain fog

No ringing in my ears (cicada head)

POTS was minimal

Even if that was 50% improvement - I could live with that

Small Man is still sleeping A LOT

Bad, bad headaches

Trying to help him detox as much as possible

Because he is unable to drink stuff that looks like this:

Whereas I can (when I get to it, hard on work days at the moment).
This is fresh beetroot, celery, pineapple, apple, cucumber, ginger, carrot, garlic juice with some chia seeds.

Epsom salt baths will help Small Man, along with reduction of sugar in his diet (which we have done).

I have ordered further supplements to the Vitamin C, Magnesium, probiotics and B12 that we are already taking.

Currently we are up to 4 x 100mg of Doxycycline per day.
Tuesday we add 300mg Rifampicin
7 days later we add another 300mg Rifampicin
7 days later we start Plaquenil

So far we can live with the Herx

G
x♥x

Information/Symptom List

Straight Forward Symptom List

Some Australian Statistics ~ Small Man and I are going to stuff up theirs stats!!

If you think you could be affected by Lyme or it's co-infections and your GP won't test you for it....

Get a new GP.

It's your life.

In early May I would never have even considered Lyme disease ~ we would NEVER have improved without this treatment.

G
x♥x

And On The 5th Day....

I'm travelling pretty well :)

I have had episodes of 'weird stuff' come over me and then go again

I have had this weird stuff before, so there is nothing new, just haven't had it all in one or two days like this

Nausea after I eat

Big time pins and needles in my head

Crawly feelings (kids used to say I was on crack when I used to get this!) - like something is crawling on your face/head but there's nothing there

The cicadas in my head got pretty loud

Air hunger last night

Random coldness

Word block is insane

Some shortness of breath

Feeling like my knees and elbows are swelling up, but they look ok

Feeling emotional ~ a bit teary

I even went to bed early

And woke up early!!!

Small Man on the other hand

Has had an insane headache

Waves of tiredness

Feeling like he is drugged out

Sleeping a lot more

I find it interesting how we have the same thing,

Yet we are so different symptomatically

Crazy disease

The chemist, and organising medication was ridiculously stressful
We ended up starting Doxycycline on the same day
The next round of stuff we need to add I have had to order from the mainland
May as well be living on the moon sometimes

Feeling grateful for friends that care
That keep asking how we are going
That are happy for us 
And supportive

My man has vacuumed this week, unpacked dishwashers, got groceries, offered to put washing away (I had to decline on this, god love him for offering but I may need to find these things again at some stage :P )♥

Mum has been up and folded a heap of washing for me ♥

I had offers of help to pack the order ♥

I find it hard to accept help
Being married to a shift worker
The rare event that anyone looked after my kids
Have all made me very independant
That's not to say that I run a spotless household and everything gets done
Of course it doesn't
I haven't exactly been well for 13 years
But I find it hard to let anyone help me with many things
I also need to do what I can when I can
In case there is a day when I can't
And I do need help

I have cooked sooo much food this week
Cos just in case... 

G
x♥x

That time when....

Long story short

Our appointment went very well

I have Lyme disease

 There, I said it....

I have Lyme, Bartonella, Rickettsia, and possibly/probably Babesia

I need testing for insulin resistance, thyroid function, hormone levels...to name a few.

Small Man has Bartonella, Rickettsia possibly Babesia and possibly/probably Lyme.
He needs cardiological investigation to rule out any damage to his heart from Bartonella.
We are hoping to get further 'evidence' of Bartonella before he sees the cardiologist here, in case he is sceptical or doesn't handle it 'well'.
Last thing we need is another one of 'those' appointments.

I will need the same, but one thing at a time, but probably before the end of this year.

We both had a mountain of blood tests done yesterday, at two different laboratories

Definite diagnosis for a few of the co-infections depend on the test results



For now we are both being treated

As soon as I can collect the scripts

He has started me on tablet form YAY!! 



Yesterdays tests cost $1900

I hadn't quite prepared for that

All necessary though

We had extra blood taken

To be stored for up to 3 months

For testing in the USA

That will be another $1000

Consultation fee could be $1000 - $1400

BUT

Small Man could be much better within a few months!!!

It may take a few years for me to fully recover

But it's there

That light

At the end of this shit

So much to take in

My head was going to explode

I was lucky

I had the experience of TWO very good doctors for my consultation

I had them pretty excited a few times

With my bizarre repertoire of symptoms

 Positive Babinski sign

Stupid curved fingernails

Rickettsia rash (YAY!! now I know what it is!!!)

Bartonella rash on my hip

And Small Man's whole back!!

We are far from there

Treatment can get rough

But we will mange

We always do :)

G
x♥x

Slightly Nervous

An extract from the web page of the doctor we are seeing soon:

Treatment Options

When considering antibiotic treatment, do we use Oral, IM or IV? There are many choices to be made and combination therapy is needed. There is no single wonder drug, and treatments need to be cycled every 6-12 weeks depending on response.

If a patient has had long standing symptoms and is debilitated orals will not work so well and possibly not at all. The same applies to any patient over 60 and also those who have ever had cortisone by oral or parenteral routes since the onset of Lyme disease. Indeed some proponents advocate this latter group must have parenteral antibiotics.

*Parenteral

Not in or through the digestive system. Parenteral nutrition is given through the veins of the circulatory system, rather than through the digestive system.

I was given prednisolone - heaps of it.

For around 12 - 18 months until I realised it wasn't helping me and stopped taking it.

Thank GOD I refused steroids for Small Man.

G

x♥x

p.s. Ear is still ringing :/

Hard

To look back over the last 12+ years,

And think of things I haven't been able to do

Without feeling guilty

I have tried so hard

Put all of my energy into appearing to live a normal life

I would never want anyone to think it was because I didn't 'want' to do things

Rather that it was just too hard

I'm no quitter

G
Xx

DID I REALISE>>>>>

I'm still here

I think I'm still in shock

And still being shocked by a few peoples reactions, although I shouldn't give a rats arse

Most have been great, want to know more, supportive

other have come across almost pissed off, skeptical, annoyed

One of the Australian Lyme support groups I joined on FB has nearly 500 members, that's just one group, that's just on facebook

snippy comments

Scared I might not be available for them to dump all of their problems onto most likely



I KNOW I am worse since we received our test results

WHY?

A: I don't feel like I have to hide it any more

B: Extreme amounts of emotional upheaval have ALWAYS had a negative impact on my health, happy/sad/angry/excited it makes no difference

I can't mentally conjure up the skin infection I had for the last 2 weeks
It looked (and felt) like I had shaved my bikini line with a dry, blunt razor in the dark 
I also had a huge patch on my chest
My GP actually cringed looking at it
5 prescriptions later and it's a lot better now

Pretty active imagination I have

I have had to take antibiotics for the skin infection
I need to have 14 days clear of them before our appointment as it affects test results
Thank goodness the timing is spot on

I woke up on Sunday with my face all puffy and eyes all swollen up, a horrid cold sore...
I just couldn't get up :(

We are still off to Melbourne NEXT WEEK!!!! 
For a pre planned pre paid holiday, and to see P!NK in concert

Corey is coming up from Hobart on Sunday to keep Small Man company and will be here for 10 days
Such a relief not to have to leave him here alone

Possum will be here but works night shift every weekend

My Possum turned 22 on Saturday, precious young man he is ♥♥♥

G
x♥x

p.s. That infernal ringing in my left ear?? Still there :(

Bumbling Along

Things are pretty much the same

Although I am taking more notice of things I have just ignored ~ until recently

Walking up a hill after dinner with friends

And I was badly short of breath

I realise I am unfit but wow

The sweating is ridiculous

Then the extreme cold chills

It feel like I have been tasered in the back or something

When it's really bad I get this horrible stinging in the palms of my hands

Fun

I just want to document everything

So that I can look back on it with disbelief some day

I woke up this morning with a mouth full of blood

Not sure where that came from it wasn't my nose

Random

Still with the infernal ringing in the ears.......

Relying on the few hours of slightly improved energy to get everything done

Oh did I say everything?

No, just the important stuff

I'm doing my best

I'm trying so hard

I'm sure it doesn't look like it....

G
x♥x

I see..

Flights are all booked

We are only going for the night

Not much in the way of return flights to stay for 2 nights

Possum has decided not to come

I need to scan all of our test results and send them through to the new Doc

And still a few other things before we go

Small Man had an appointment with the surgeon yesterday, in the middle of all of the drama

It went well, no problems this time hopefully

I am giving myself permission to take things a bit easier
I was supposed to pack the order in the freezing cold last night but given that I am positive for:

Chlamydophila pneumoniae is a species of Chlamydophila, an obligate intracellular bacterium^[2] that infects humans and is a major cause of pneumonia

Legionella is a pathogenic group of gram negative bacterium, that includes the species L. pneumophila, which causes Legionnaires Disease and L.longbeachae which causes Pontiac Fever.^[1][2] 

With a bit of:

Scrub typhus or Bush typhus is a form of typhus caused by the intracellular parasite Orientia tsutsugamushi, a Gram-negative α-proteobacterium offamily Rickettsiaceae first isolated and identified in 1930 in Japan.^[1][2]

Thrown in....

....and the other few.

I thought it best not to be out sweating in the cold.

Not that it feels much warmer this morning, but deadlines are deadlines and I have managed until this point.

Yes it could be worse, it could always be worse, there is always something worse but try and imagine how you might feel if you had been sick for over 10 years, slowly getting worse and with no answer?

If you had to sit and watch your son miss out on 7 years of his life, only to find he has a disease that could have been treated with antibiotics??

My life's hurdles can't be compared to those of someone elses.

I think I'm allowed to feel however I like about this actually.


For some reason I feel like a cigarette this morning, but that will pass.

G
x♥x

Naturally it all got sorted out

And he is able to go with us to Sydney.

So now it's July for our appointment.

I'm just so tired and relieved

Did I mention I'm completely OVER this infernal ringing in my ear?

G
x♥x

That time when I couldn't stop bawling

Like this afternoon.

We had it all organised, then the secretary emails me, the doctor is on leave mid August, it wasn't written in the book.

If Big A can't get someone to cover him in July, then Small Man and I will have to go on our own.

No big deal?

It is when you can barely go to the supermarket on your own.

I am sensing some thinly veiled scepticism from a few people STILL.

You know what?

F*ck off.

I don't need it.

Blah Blah Fecking Blah ;)

I'm writing a lot more because I'm thinking a lot more,

in fact it nevers stops

neither does this infernal ringing in my fecking ears :(

Cos that's just how I roll these days (and I roll, trust me)

~

I am thinking about how things were

How things might be

The 7 year cycle for Small Man that may well get broken, smashed into smithereens even

And the chain reaction

people considering their own state of health

Everyone knows someone that this shit will fit

Where's the harm in getting it checked out?

There isn't any.

~

Looking at accommodation in Sydney

Jesus, they do know we are just going for the night, right? 

Well that's how it looks as it's getting exy, 2 nights is pushing it

But then if I have learnt just one thing from this whole saga

It's that life is far too short

Experiences, not money, that's the wealth

Unfortunately though some experiences cost money

Not sure I want to take my baby to Sydney to look at the inside of a hotel room overnight, then a waiting room, then whisk him home again

This young man has missed out on too much already

Maybe some people we know that are related and have a few spare $$ will sponsor us??

Not sure if Possum is going to come with us or not, depends how long we end up going for, not much point if it's just overnight

~

My goal is to have Small Man recovered by the time he is 21

Treatment can take a while

My sleep pattern is currently cactus

~

I missed an appointment today

I NEVER miss appointments

I feel so bad :(



Sorry, if you have just found me again or noticed my raving posts, I will add a link to the one you might want to read, so that you don't think I have totally lost it ;)

G
x♥x


Click here :)