A journal of my life. If you are looking for the poetic, the profound or the insightful you are probably in the wrong place!
Saturday, July 20, 2013
That time when....
Long story short
Our appointment went very well
I have Lyme disease
There, I said it....
I have Lyme, Bartonella, Rickettsia, and possibly/probably Babesia
I need testing for insulin resistance, thyroid function, hormone levels...to name a few.
Small Man has Bartonella, Rickettsia possibly Babesia and possibly/probably Lyme.
He needs cardiological investigation to rule out any damage to his heart from Bartonella.
We are hoping to get further 'evidence' of Bartonella before he sees the cardiologist here, in case he is sceptical or doesn't handle it 'well'.
Last thing we need is another one of 'those' appointments.
I will need the same, but one thing at a time, but probably before the end of this year.
We both had a mountain of blood tests done yesterday, at two different laboratories
Definite diagnosis for a few of the co-infections depend on the test results
For now we are both being treated
As soon as I can collect the scripts
He has started me on tablet form YAY!!
Yesterdays tests cost $1900
I hadn't quite prepared for that
All necessary though
We had extra blood taken
To be stored for up to 3 months
For testing in the USA
That will be another $1000
Consultation fee could be $1000 - $1400
BUT
Small Man could be much better within a few months!!!
It may take a few years for me to fully recover
But it's there
That light
At the end of this shit
So much to take in
My head was going to explode
I was lucky
I had the experience of TWO very good doctors for my consultation
I had them pretty excited a few times
With my bizarre repertoire of symptoms
Positive Babinski sign
Stupid curved fingernails
Rickettsia rash (YAY!! now I know what it is!!!)
Bartonella rash on my hip
And Small Man's whole back!!
We are far from there
Treatment can get rough
But we will mange
We always do :)
G
x♥x
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5 comments:
Yes, you always do.
You are a remarkable woman Gina. Remarkable.
So happy you have a diagnosis. Now onto recovery!
Stupid effing doctors that don't listen to their patients or read up on symptoms. If they had, you would both be well and truly healthy years ago! Good news to hear that you on on the journey to health.xxoo
This is a wonderfully positive post, Gina. Go you and Small Man! You can both look forward with hope in your hearts ;0)
Thank you lovelies, means so much to me xxxx
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