Saturday, July 20, 2013

That time when....



Long story short

Our appointment went very well

I have Lyme disease

 There, I said it....

I have Lyme, Bartonella, Rickettsia, and possibly/probably Babesia

I need testing for insulin resistance, thyroid function, hormone levels...to name a few.

Small Man has Bartonella, Rickettsia possibly Babesia and possibly/probably Lyme.
He needs cardiological investigation to rule out any damage to his heart from Bartonella.
We are hoping to get further 'evidence' of Bartonella before he sees the cardiologist here, in case he is sceptical or doesn't handle it 'well'.
Last thing we need is another one of 'those' appointments.

I will need the same, but one thing at a time, but probably before the end of this year.

We both had a mountain of blood tests done yesterday, at two different laboratories

Definite diagnosis for a few of the co-infections depend on the test results



For now we are both being treated

As soon as I can collect the scripts

He has started me on tablet form YAY!! 



Yesterdays tests cost $1900

I hadn't quite prepared for that

All necessary though

We had extra blood taken

To be stored for up to 3 months

For testing in the USA

That will be another $1000

Consultation fee could be $1000 - $1400

BUT

Small Man could be much better within a few months!!!

It may take a few years for me to fully recover

But it's there

That light

At the end of this shit

So much to take in

My head was going to explode

I was lucky

I had the experience of TWO very good doctors for my consultation

I had them pretty excited a few times

With my bizarre repertoire of symptoms

 Positive Babinski sign

Stupid curved fingernails

Rickettsia rash (YAY!! now I know what it is!!!)

Bartonella rash on my hip

And Small Man's whole back!!

We are far from there

Treatment can get rough

But we will mange

We always do :)

G
x♥x


5 comments:

Unknown said...

Yes, you always do.
You are a remarkable woman Gina. Remarkable.

angela said...

So happy you have a diagnosis. Now onto recovery!

Lydia La La said...

Stupid effing doctors that don't listen to their patients or read up on symptoms. If they had, you would both be well and truly healthy years ago! Good news to hear that you on on the journey to health.xxoo

Cyndy said...

This is a wonderfully positive post, Gina. Go you and Small Man! You can both look forward with hope in your hearts ;0)

Myst_72 said...

Thank you lovelies, means so much to me xxxx