And then we got HACKED

Fucking hackers

Low life scum

Hacked our PayPal account VIA FACEBOOK (not my fb account either) to the tune of $810 in 5 seperate transactions

Could have been worse

But it takes 7 - 10 days to be investigated and the money back in our account

*sigh*

Big A mentioned something about their subsequent lack of ability to type if he got hold of them......

G
xx

In Other News

Possum has a job interview Monday afternoon...

It's a long shot (or sounds like it) - it's for an analyst/programmer position - which he has never done...

I (as in he) (as in I) emailed 'the guy' and asked, and was honest in that it is an area he has no experience in - he did 3D graphics and sisco networking and all the fixing computer stuff (cos I'm all up with the lingo!) at school/college and his traineeship, but not programming or analyst type work...

The guy said to email through his resume so he (I) did...

They must have seen something there because he has an interview Monday afternoon

He did say it's a 'graduate' position not sure wtf that means? Graduate from what? Uni ? 

Oh well, the more interview experience the better

I'm an excellent secretary :P

G
x♥x

Update - for record keeping type purposes

Following our exciting news Tuesday - we had an appointment that afternoon for Small Man to discuss his blood test results with our GP

When I rang for them a week or so earlier the receptionist told me that his blood sugar level was abnormal

So I was expecting to be talking about that

As it happened it was a bit abnormal/high and needs re-testing - that's ok we can do that

The worrying part was his liver function tests - ALT and GGT - 

GGT should be 5 - 40 - his is now 222

Last time we freaked out about this it was at 130

ALT should be 5 - 40 - it is currently 114

My GP commented that it's at the level of a full blown adult alcoholic ~ great

I asked him to refer us for an ultrasound or something to get his liver checked, it hasn't been done since 2007.

We went this morning for the ultrasound.

Yesterday I emailed a copy of the blood test results to Matt who replied with 'Very abnormal liver function' and that he would like, pending the ultrasound results, for SM to see a gastroenterologist, possibly for a liver biposy, and to rule out viral hepatitis.

He agreed with me that the tests results were a bit of a worry :(

The good news is that Small Man has managed to gain only 4kg in 12 months - I am so pleased!! 

He has averaged a 10kg gain per year over the last 4 years - over the first 12 months of his illness he gained a staggering 25 - 30kg.

It occured to me that the increase in liver function results didn't match the weight gain, if he had had a huge gain it would have made more sense....hmmm....

I have to admit I haven't slept well the last few nights.

I know that worrying doesn't solve/change or fix anything, in fact it just makes you tired and reduces your ability to cope.

That being said the mother section of my brain can't quite come to the party in that regard.

 G

x♥x

It was all worth it - just for the look on his face ♥

Finally

Centrelink called me this morning to say that having reviewed the extra information from Matt, and the statement written by Small Man (aka me)...

He has been approved for the Disability Pension

The woman must think I'm mad - I cried when she rang to say his last claim was rejected - and I cried when she rang to say he had been approved this time

I think I said 'Thank you' about 20 times....

Well it is somewhat emotional - pretty much the whole thing has been from day one

As with the visit to the surgeon in which he was stunned for about an hour afterwards, today's reaction was very much the same

"Mum, you're getting tears on me..."

Finally it sinks in......I see hope in his eyes

That made it all worth it, and I'd go through it all again

Least I could do really

♥

~Limbo Land~ *language warning....

Well I am still here - balancing the same old tightrope in our life of limbo

We want to resolve the issues with wankerish government departments before digging into anything else (Austin hospital program), oh yes, and then there were THOSE PHONE CALLS this week

Like de ja vu only it wasn't pleasant and tingly - it was a hypertension inducing recurring nightmare


At this point in time Small Man is NOT on a waiting list for anything -

Except the waiting list for getting fucked around which he must have hit the top of a million times over the last 5 years


I am now told that his paperwork for the operation was rejected and returned to the surgeon as 'Not meeting the criteria' - because of his age. 
So this was somewhere between July 2010 and November 2010 and I'm only just finding out now.....
I'm not asking for easy, I don't expect easy, it has never been easy - but for fucks sake a bit less of the bullshit would be fan-fucking tastic

AND from calling the GP surgery his blood sugar is 'abnormal' I have to try and get an appointment to see what is going on there  - oh I booked one - next available was the 2nd of May - that's just friggen awesome isn't it.

I'm not sure if I have posted this here before but thought I would share it with you anyway:

The Top Ten Things NOT to say to someone with Chronic Fatigue Syndrome (or to their mother, thanks)

1. "I get tired too."
 

2. "You don't look sick."

3. "If you'd just get some exercise ..."

4. "This is obviously depression."

5. "It can't be that bad."

6. "My friend had that but they weren't sick this long."

7. "You sure you're not just doing this for the attention?"

8. "If you prayed more you wouldn't be sick."

9. "If you really wanted to get better ...maybe you need to TRY harder"

10. Nothing.

Whatever else you do, do not say nothing. 

 

Nothing - that thing people do when they stop asking how he is. 

I know there isn't anything to say, I know there isn't an answer.

I KNOW how long this has gone on for - and there have only been a handful of ACTIVE support people for each of us.  I will be grateful to them for the rest of my life.

I am expecting a call from the surgeons PA tomorrow or Tuesday. Long story short Matt has made his disappointment over the situation known to the surgeon, as have I to the PA.  The surgeon has been in New York and will be back tomorrow.

On a positive note I seemed to have turned a bit of a corner myself health wise.

My mind seems clearer, I am not as fatigued.

I made it to the gym almost every day last week.  

The key to not over doing it is fitting it into a tight time frame.  

Small Man has been forcing himself to go to college with the main focus on drama lessons - he is part of a play and doesn't want to let everyone else down by not being there.  Even just three lessons per week with an average of two lessons per day is too much for him. 

Anyway, if I drop him off at 10.55am it gives me until 12.05pm to get to the gym do a short workout (treadmill mostly this week) shower etc and get back to pick him up.  

I have done really well with this approach - I can't be tempted to get on the treadmill for an hour - because I have to be there to pick SM up.  It is a good start.

In between all of this I also worked from around 2pm until 9.30pm  Wednesday, most of the day Thursday and then a few hours Thursday night, then Friday afternoon.

Yesterday I woke up with a sore throat/blocked nose and basically felt like I was getting a cold, so had a very quiet day of rest.  I feel much better today and back on track.

I think it must be the mouth guard, I actually like wearing it - so now the time has come to get one made up properly at the dentist.

Anyway - on that note - be kind to each other - or at least try......

G

x♥x