~Disappointment Of Sorts~

Feeling a bit, well, let down by people in general

I don't have high expectations at all

But there are some that haven't even bothered to ask how we are going since starting treatment

I find this really sad

That they really just don't care enough to ask

Yet when someone else has the flu they are falling all over themselves

And I also hate it when people that know full well that we are NOT well

Make the statement

'Hope you are all well'

Thats not a question!!

Oh well, at least I know who gives a rats arse and who doesn't.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

We saw the cardiologist yesterday for SM's results

Nothing to worry about cardiologically but he feels his reaction to the tilt table test was neurological.

He also wants him to have another sleep study.

So it looks like a few more appointments yet.

Oh and he needs to start using his CPAP again.

He was actually fine with that which surprised me.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

My work is typically busy for this time of year

Except we have had record sales which is fabbo

Record sales = someone needs to pack that shit

And I am struggling to function some days

At least the nausea has settled

But I am still not taking the full dose of meds

I need to add 1 Rifampicin per day, and then 2 Plaquenil

We will get our latest liver function test results today

And my 'heavy metal' test results (lead and mercury)

The pathology have kept my test request on file for 'serial monitoring'
Meaning I will have to have it checked frequently

Should be fun 

The girl I have managed to get the last few times has been good at finding my veins
Which makes the whole exercise a lot easier


Anyhoo

I'm going to be spending minimal time on FB for the next few days at least

It just makes me feel worse

Even though I wouldn't have a diagnosis without it

And I use messenger an awful lot for work

And there have been many days where it's all I could manage

And it stops me feeling so isolated

It also kind of makes me sad to read about other people getting on with their lives in the usual way, and frustrated not knowing how long it will be before I can just get out of bed and get through a full day without any issue.

Don't take your health for granted !!


G
x♥x