I had many plans for today....
And didn't get many of them done.....
Had two field visits arranged, one had to take a rain check (cos I couldn't get there until this afternoon) - so I rearranged the other because they are both on the other side of town.
I DID manage to be on the phone for around two hours all up, sorting out the latest mess I've been forced into - maybe I've fixed it maybe not - let's see who's still with us in two weeks....
I was waiting for the Professor to call again today - so rang his secretary again and asked him to call me back. Nothing yet.
In the mean time Small Man hasn't improved even slightly.
I couldn't even get him interested in school today - he said last time he went it knocked him around so much he's reluctant to try again. I understand that. You start to fear the fatigue, and avoid doing anything that will make it worse.
Meanwhile someone else here has started crapping on about home schooling again.
I said that's fine - start looking into shift work then because I won't be able to work and home school, and keep Z16 organised for school and work, and run this house.
How about worrying about why this child is still so unwell after TWO F@CKING YEARS and not improving.
How about worrying about how it feels to be stuck at home for TWO F@CKING YEARS feeling like absolute crap and no-one is prepared to help you or fix it or tell you WHY.
How about worrying about the fact that he hasn't switched his mobile phone on for nearly two weeks and isn't interested in contacting his friends or going anywhere??????
Or what about the fact that he was in bed at 8.15pm tonight...................????
And how it's absolutely breaking my heart into a million pieces, one piece at a time......
Lets get those bits out of the way shall we????????
Yes, school is a worry. His health is a far bigger worry. His self esteem is a far bigger worry.
I know - how about making me MUCH more stressed than I already am.
That should be fun to watch.
G
xx
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