A journal of my life. If you are looking for the poetic, the profound or the insightful you are probably in the wrong place!
Friday, July 30, 2010
~aNd ThEn~
We saw Matt the next morning ~ Tuesday at 10am...
We arrive at the desk, having checked out where we had to go the day before (cos I'm all organised like that...yeah...)....
We tell the receptionist we are there for an appointment with Matt - blank/puzzled stare - are we SURE it's with Matt?? Matt doesn't work there Tuesdays, did we have an appointment card?
"No, he emailed me..."
......then a 'I'll page him for you then' in that "oh here we go a pair of crazies got the wrong day" type voice.
Ten minutes later a beaming Matt arrives to see us, asks for a free room and off we go.
She must have thought 'who the hell are they?' ha ha!
So anyway Matt was thrilled to see us, and very pleased about our news from the surgeon.
We talked about all sorts of stuff, things he wants done before the operation, and MRI of SM's brain just in case - and another blood test, also requested by the physician we had seen the previous day, Matt added a few extra things to it that he wanted checked.....
I was blown away by the way the doctors over there put themselves out so much for Small Man - it was humbling - I have never felt such gratitude.
Matt was even saying that he was writing a thesis on genetic/endocrine disorders contributing to weight gain, and that in the back of his mind the whole time was 'does any of this/these fit with Small Man?' considering he has over 300 families on his books, that was mind blowing....let alone him coming in to meet us on a day where he doesn't work at the hospital....
He said he kind of knew the surgeon was going to agree, but he couldn't tell us that!!
He has 10 patients that he wants banded, as far as I can tell Small Man will be the first under this program - wow.
I'm sure there are people reading this that disagree, that's fine, it's their choice - but don't be too quick to judge me on this - if you have been reading this blog for the last 3 years you would know where we are with this - we have been pursuing this for at least 2 years, and haven't rushed into it.
Am I scared of 'putting him through this' ? I am scared of NOT 'putting him through this'....
He has 60 - 70kg to lose - around 150lb - luckily his blood sugar levels are fine...FOR NOW....I'm not prepared to wait for him to get diabetes.
We have tried everything else - Chronic Fatigue Syndrome and Selective Eating Disorder makes this nearly impossible to correct with diet and exercise alone.
And his mother is exhausted.
Can you imagine your child getting sick, and you keep waiting for him to get better for 4 long years, and it doesn't happen - and it doesn't get worse either - you are permanently in limbo land.
During all of this you are beaten down by other peoples 'opinions' and attitudes, you have to fight and wait for the most basic of things (like education, proper medical help etc).....you have little family support and your child ends up with such severe anxiety and depression at times it is frightening.....let alone the weight gain and self esteem issues....
So yeah - I'm going to do what I know is right - and bugger anyone that disagrees or wants to criticise me!!!
G
x♥x
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6 comments:
You tell 'em sweetheart. Dr Matt sounds like a winner.♥
You won't hear any criticism from me, my sweet. I'm so happy for SM - and for you. I know how you've agonized over all of this - I'm so glad you can see an end to it - well away though it may be - it IS out there now.
Onya, G !
That's fab news about Matt :)
Bloody Fantastic!!!! This will change all your lives for so much the better... I am excited for you all. I knew there were some nice Doctors out there..... They are pretty scarce up here. Great going girl.... I've been thru the wringer fighting the medical profession for my kids at times and it is so hard...
I was usually in tears and the doctor was usually arrogant..
not a good mix.. All the very best of luck and expertise for SM.
love,
Dell.
Nats ~ He sure is :D Thank you, SM wasn't here last night, and I tend to let my emotions out when he's not here ♥
Lou ~ I know Lou, you're the best :D It will be a process, but the results should be encouraging..♥
Jayne ~ Thank you :D Matt is really fantastic, worth his weigh in gold :D ♥
Dell ~ Yes :D Yay, after all of this time. We saw our share of idiots here, and these guys really make up for it ♥
G
x♥x
You do what is right because it is you and only you who knows your son as you do and ~that~ is what saves him (((hugs))) and the Universe supports you by guiding you both to the right people... i know this because it happened to me and my first~born too x
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