Tuesday, February 22, 2011

~Cheerleading can be a tough gig~

Or personal assistant/coach/ enthusiator (is that a word?)...

Tougher though for the cheer-led/coached/assisted young man with CFS and some pretty heavy anxiety/depressive issues

I am so proud of Small Man for the effort he has put into attending his college classes

He managed two full days (introductory), then the final lesson of the next afternoon...before crashing in a fairly predicted but reasonably big heap on the last day of the week

Monday he attended both lesson, first thing in the morning, finishing at recess time
Today he had two lessons between recess and lunch

Tonight he is very overtired and feeling down

He took the centrelink news quite well last week, but today it has dawned on him that he has been let down AGAIN by the system - yeah yeah we all have disappointments rah-de-rah-da but try being 16, unable to live a 'normal' life for the past 5 years and being let down at every possible opportunity, or in the very least being subjected to delay after delay after delay......

I am keeping a good eye on him

It has been fairly tiring for me too both physically and mentally.  
It's not just oh well drop him at college and come home again, in an effort to keep him from finding things too difficult (and draining which would lead to him not wanting to go for that very reason)  I am doing as much as I can to get him ready, making his breakfast, packing his bag, preparing lunch/recess, getting his clothes ready - that sort of stuff. 

I have put off going back to  the ENT for 4 months.

I went and saw him yesterday - basically he was all gung-ho about the Uvula Palatoplasty or what I like to call cutting half of the back of my throat out and my tonsils - but then he added another little extra that should 'REALLY HELP' - cutting some of my tongue out - yeah nah - she'll be right thanks mate.......(not sure what happened to the font here...sorry bout that!)...
So I am going to have to try and fix this thing myself.  
I'm just not tough enough physically or emotional for that sort of pain and recovery, not now :(

Otherwise, all is ok.  
and I am grateful for many things - including lovely and very important doctors that go out of their way despite being over worked already, and lovely maths teachers that don't make me feel like an interfering old biddy when I ring to discuss the complexities of Small Man's situation :)

G
x♥x



4 comments:

Jayne said...

Good grief don't let him cut your tongue!
We'd never get another word out of you! :P

Myst_72 said...

Jayne ~ I know!!! What is he thinking of!! :D

G
xx

Natalie said...

Resist,resist that op. Gina.
Glad to hear SM is soldiering on.

Thanks for the nice message on my blog. We can always chat via blog or email.Just ask Toni,she has the address. Also, thanks for being the only person to ask about my test results.There are some more to come, which don't thrill me at all.x

JahTeh said...

I must be stupid as I can't see how cutting any part of your tongue would help.

Sorry about Small Man and Centrelink. Are they expecting him to live on fresh air while he waits for the lap band? I've never heard of that rule.