So I went to bed extremely sad last night after writing my previous post, I was also angry and worked up
It has occured to me the main thing I am so frustrated with is this:
Small Man has been suffering with this condition for 6 years now
Why can't family (from both sides) take the time to find out a bit about it and at least have an informed opinion ~ instead of constantly saying the wrong thing and just basically pissing me off and constantly putting me on the defensive???
Aren't we dealing with enough here?
Maybe I am asking too much?
Maybe people just want to think they know all about this illness, and therefore have some sort of entitlement to make comments?
What do I do print off some brochures???
There has been far too much focus on school and losing weight quickly
The whole point of school was to give him something to pass the time, but only if he was up to it
We struggled through year 11 but he made it
This year started out ok, but has completely bombed out since this recent relapse
The last thing he needs is to feel under pressure, to push himself etc etc
No, I'm not giving up - I am being realistic
Yes, it hurts like hell that he is unable to even attend one lesson per day, but his health and self esteem MUST come first
The other real problem I have is if this were any other illness we wouldn't be in this situation, but once again that comes down to a lack of knowledge from others - and I am sick of it
G
x♥x
5 comments:
Somehow, I get the feeling that those of us out here, your blogging family, know more about Small Man and the issues he and you deal with than does your "physical" family. Why not go through and find relevant posts, edit for coherency, and print them out for that family to read - and perhaps gain some understanding.
And no worries. We love you.
I think you are quite right Lou :) & Thank You :)
Love you too my friend xx
I know when I have a problem others comments hurt me more than normally. This is probably the same with you BUT you wonder just how long it takes for others to bloody just be supportive and be mindful of the words they utter. The lad is NOT pretending. He is debilitated through no fault of his own. Maybe you have to warn the offenders that you don't want to hear one more negative word in your presence. As Lou wrote, we, of the blogging world know where you are coming from and love you. Take care and chin up, Kiddo. XXOO
Thanks Lyd. I think I just can't believe they don't care enough to find out more about cfs/me and be more supportive. Oh well, their loss hey.
G
xx
I find a good sharp slap in the face gets peoples attention, makes them listen good.
(just kidding)
((not really))
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