Friday, June 1, 2012

~ N.F.I ~

I'm really not sure what to do at the moment

Small Man is still sleeping 12 - 14 hours per night, sometimes longer

He is over his cold/flu virus

But still ravaged by fatigue

He admitted to me yesterday that he feels mentally/emotionally as broken as he does physically

I asked him if he feels our GP could help, and he said no he doesn't

But what if I don't take him and there is something else physically going on?

Or what if I do and he tells me to let him 'rest' and we come home as frustrated and at the end of our wits as we were before we went....or more so....


There is no way he is up to travelling to Melbourne to see the CFS/ME specialist at the moment, just no way.

We are currently trying Astra 8 Immune Tonic, Vitamin B12, D-Ribose, Vitamin D & Vitamin C.
Last night I put him to bed with some of those Herbal Foot Patch thingoes with lots of drops of Oil of Cloves ~ failing everything else at least his feet won't get mouldy.....


Maybe I will just see how he goes over the weekend, and then make an appointment next week some time.....I am also not keen to take him to the doctors surgery full of people that think they need antibiotics for the flu - god that pisses me off!!!


Any input gratefully received. I am usually all over this stuff but at the moment I feel like the first time parent of a new baby, NFI....


G
x♥x


4 comments:

me/cfs warrior said...

I've just read a couple posts so I'm not familiar with your situation.

I'm so sorry to see that your son suffers from ME/CFS.

How long has he been sick?

It must be heart breaking for you to watch him suffer with this.

Feel free to contact me with any questions at cfswarrior@gmail.com

Myst_72 said...

Hi - thanks so much.
It's been 6 years, so his entire teenage life unfortunately.
We were pacing his fatigue so well, and it would be just the odd over doing things that would put him out for a few days. It's been 6 or 7 weeks since the most recent virus, then he had another on top of that and he isn't improving at all.

Thanks again,
G
xx

Jayne said...

G, I am so sorry to hear this, you and Small Man must be wrung out mentally and physically, I hope he gets a break soon xxx

Myst_72 said...

Thanks so much Jayne. Yes, today he was up at 3pm and was back in bed at 9pm, it's pretty awful but hopefully things will get better soon. G xxx