Saturday, June 16, 2012

~ The Waiting Game ~


This is a difficult place to be

Aside from the Vitamin D deficiency the test results were ok, in fact his liver function has improved dramatically, his cholesterol has improved slightly, as has his blood sugar - this is awesome news I was thrilled to bits...

BUT....

It still doesn't give me an answer or solution to his recent struggle

I just refuse to accept that this is the new benchmark, 14 hours or more of sleep every night - and all because of another virus??

My patience for this condition is at an all time low

I will get over it I just can't accept that this is his life at the moment
Very hard when friends kids of the same age are off overseas and whatever, and here we are planning in advance the lack of activity required for the lead up to a few days in Hobart
Or the realisation that he isn't ready to go back to school Monday with the start of the new term
Yeah I guess I am bitter and angry at this bastard of a condition, but I don't let on anywhere but here, and in my own thoughts


It's a catch 22 - you are praying nothing comes back in the test results but at the same time hoping there is something simple that can be fixed easily


*sigh*


I think he is going to need to see the CFS/ME specialist in Melbourne in the next few months


In the mean time the Vitamin D I ordered was just the ticket, he is allowed 40,000 iu per week, which is one per day until he builds up
I am so hopeful this will help, even just a little bit

Aside from that we have to 'wait and see how he is in a few weeks time' then go back to the GP

I dunno :/

G
x♥x


5 comments:

angela said...

I hope the vit D helps. It didn't do much of a difference to me but then again it was really low and anything you can " fix" you do . Hugs to you both

Jayne said...

Hope things start to improve for SM soon, fingers crossed for you all xxx

Myst_72 said...

Thanks so much Angela and Jayne xx

me/cfs warrior said...

I haven't followed your blog. This is my first time here so I don't know how old your son is.

Has he been tested for EBV, chlamydia pneunomia, or mycoplasma?

EBV can scoop in on Vitamin D levels making them low.

My heart goes out to you as a parent. It must be so painful to watch while also balancing out the resentment etc...

Myst_72 said...

Hi me/cfs warrior - my son is 17. The whole thing started 6 years ago after glandular fever. He has had countless tests over the years, not sure if the checked the EBV this time but it's been out of range every time they have. Mycoplasma - he was tested for this early on but not recently.
Thank you so much. It has been a challenge to stay on top of this emotionally at times x