Tuesday, February 19, 2008

Not what I expected, but what I knew



I have had a strange feeling all week there would be disappointment today................

O.k.

Just got home.

Arrived at appointment to find they had not received referral from paediatrician. Secretary rings paed secretary - she will ring back in 5 mins.
She rings back, and puts me on the phone to paed who says he has made enquiries and isn't happy with what he heard about surgeon, and so refusues to give a referral.

Surgeon won't see us without referral (legal thing)....
So I ring our GP's rooms, and organise a referral - I wanted to see this guy for myself - Small Man was in a state, I thought if we go back with nothing he will be devastated.
So we see the surgeon, he was fine, quite good.
Explained everything, from the procedure to the risks.
We talked for a while.
I tell him why paed won't give referral,
he was o.k. with it.
But to see him I have to have a referral from a paed, and a psychological assessment to be sure Small Man is mentally mature enough.
No problem with that, but would have to go back to Hobart to see them tho, and may have to wait.
I don't mind waiting, but having thought about it I don't want to go against my paed's advice - if something went wrong I'd never forgive myself.

My paed will however, refer me to the Melbourne Childrens hospital,
which I have had in my mind anyway "I'll end up taking him to Melbourne for this".
It's not like deciding which mechanic to take your car to, and I have decided to put my faith in my paed - who saw Z16 as a 5 week old baby.
He may be older, but he's a father of 8 himself, and I trust him.

Small Man and I talked it out all the way home, and he is at peace with it all now, as I pointed out we've waited this long, a little longer won't hurt.
Big A reacted much the same way, but then is thinking on the same lines as me. When he said it seems to be two steps forward two back I suggested he think about how this is affecting Small Man, and how it feels for him. Which he has.

So anyway, the rollercoaster continues - I will go and see our paed, and go from there.
There are a lot of questions though regarding follow up treatment that I have and will need good answers for - I mean what the hell happens if something goes wrong when I bring him back??Who will look after him??

The positive from this is that at least he hasn't been denied for any reason.
AND he hasn't gained ANY weight in the last month!!!!

Oh and I got whistled at today for the first time in a while!!! Ha ha ha!
Small Man was highly amused!!! Probably some rough neck who'd come down from the mountain and hadn't seen a woman in years but still....!
I did dress up for the first time in a while....he he he!

And I got to see Grandma and Pop, Grandma actually came to the appointment with us.....she's so cool!

G
xx

3 comments:

Unknown said...

friggin hell that sounds like a nightmare- why is the universe delaying this?
mmmmm
you are wise to go with the flow and small man and I have both had good months weight wise
sending a mothers love and understanding
xxxxxxxxx

Myst_72 said...

I feel like it's the universes way of saying - you must get this right, the best option is not always the convenient one!
And I'm listening, and letting my gut instincts guide me on this, as it's all I have...

Thank you Lisa xx

G
xxx

The Tall Red Head said...

Obviously the timing isn't right for him yet, as frustrating as it is for you all. When it all comes together it will fall in place beautifully. Still, it is bloody crap having to wait!! xxx Toni