Tuesday, March 11, 2008

Blah Blah blah



And round and round it goes.....

When will it end?

I'll certainly be the last to know.

I ring the paediatrician for Small Man's blood test results,

"Meeh...the doctor will be in after 2pm today, nyeeh I'll ask him to call you back"

Good job I didn't hold my breath.

Yes, I'm sure he was busy

Yes, I'm sure there were other more urgent children for him to attend to....
That's fine, get the secretary to ring me back.......or something. The results were there.
Just tell me what they were.

It's only a phone call, but given the stuffing around we've endured over the last two years it's just pissed me off.

The test results will mean how quickly he will get this operation.
I need to know so that I can prepare him (and myself) for possibly a longer wait - 2 years hasn't been long enough for some people.

It is beyond hard to have to sit back and watch your child suffer for so long and not be able to offer him any help...or hope.

Maybe the lap band won't fix his fatigue, but he'll sure feel better about himself.

He has gained at least 25 - 30kgs since this started.

In my opinion, from spending 24 hours per day with him, I would guess the test results won't show much change to his liver function.

It is getting to the stage where he'll need to repeat grade 8 next year.
I don't want that to happen.
He needs to move up with his friends.

He needs a goal, a direction, and some hope.

The last week he has been running a low grade fever on and off,
and has turned me down on a short trip out to the shop or to get a movie.
I know he's going through a rough patch physically and all I can do is - NOTHING.
And I'm worried.

I would love to write a positive post,
but there's not much to write about at the moment - well it doesn't feel like it anyway.



I'll be sure and let you know when there is,

sook sook, whinge whinge and all that!!

G
xx

3 comments:

Anonymous said...

You poor baby.... When does it ever stop????
Can I email you?

delka@skymesh.com.au

I had what I thought was CFS for about 2 yrs BUT I discovered it was through a drug that I was taking for headaches. a beta blocker. The friggin' tests I had to see if I had cancer of the adrenal glands etc etc etc. waste of time, pain and scaredness!!!
May be his medication not helping and/or food allergy.
Cheers,
Dell.

Myst_72 said...

I have just emailed you!

Email me any time,
glad to hear from you,

G
xx

Anonymous said...

what to do when the care of your child is not in your hands anymore but in the hands of someone who cares for many? He/she must be very busy

hang in there, hopefully it all works out well.