
All very quiet on the email front.
Very.
Today we:
went to physio.....Small Man is only going to be going once every two weeks for now and they want us to 'self manage' the exercise.....Small has a chart to fill in every day for his exercises.
He has lost 4cm from his waist and 1.5cm from each arm recently.
We then had an appointment with the Paediatrician,
he has ordered further tests to check liver function etc...and is seeing the Professor associated with lap band surgery at Royal Childrens in Melbourne in about two weeks or so,
Small Man has a Staph infection in his toe - so he took a swab and gave us some antibiotics.
Continuing on the Diaformin until further notice (this is being trialled to lower blood sugar).
Mildly disappointing - we go back on the 31st March.
Small Man summed it up, when he told him "I have lost too much of my life already, and I can't that time get it back"
The wisdom of a 13 year old boy stuck at home with his harassed mother for the last two years...
so we're off to pathology in the morning for more tests.....
And that's about it.....
G
xx
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