Just as I thought

The Paediatrician called me earlier....

Small Man's blood test shows little change - slight improvement from 12 months ago but an 'elevated LD' and liver function still not right.

I told him my concerns regarding school.

I am seeing him on the 31st of March,
and from what I gather the Professor from the Melbourne Royal Children's Hospital.
Paed is a bit hard to understand.

I am thinking of writing him a letter before then, to really address the concerns I have, and the impact this is having on Small Man, his life, his friendships, his self esteem, and the effect it is having on us as a family.

We are still arguing about the whole school issue - so no support there from the Big A.
He seems to think bringing it up all of the time, or telling Small Man that he'll have to repeat the year next year will motivate him to 'try' in some way.
I disagree completely on this 'strategy' - if anything it makes Small Man worse.
The last thing he needs is pressure.
I can tell simply by his colour, what time he wakes up, what he wants to eat, how he reacts to things or interacts with his brother even how he feels.
I am spending 24 hours per day with him - I think I would know and feel insulted that my instincts are doubted sometimes.
He wants to go to school, he wants his life back - and he just can't at the moment.
How many times can I say this????

So anyway, we won't know anything until after the 31st March,
it's Easter Holidays soon so the pressure re: school will be off for a while.

We are seeing the GP next week to work out what to do with Z16 and his medication, and I will also ask him his opinion on these blood tests, and whether he will help me speed things up/add some weight with the Professor/Paediatrician appointment.

My GP agrees with me completely - that this is absolutely the only choice we have.

G
xx